Providing the information and services the community needs regarding HIV, AIDS and TB

The prevalence of HIV in Uganda is monitored by the Ministry of Health, the AIDS Control Programme and on the government's behalf by UNAIDS, PEPFAR and UNGASS. HIV counselling and testing services are the main sources of information on new infections, the socio-economic character of those being tested and also their other health practices and conditions. Hope Clinic Lukuli, being a general practice facility, is better suited than a HIV testing-only site, or a maternal health site without HIV services, to provide a broader population from which to determine barriers to accessing services and the proportion of people tested who are found as HIV positive. A key message we have learned from the clients is that the past barriers to accessing information on HIV, AIDS and TB - distance, stigma-laded clinics, cost - has meant that many people are visiting Hope Clinic because of our mobilisation work and style of services rather than due to a recent 'risk event'. Our monthly reporting statistics to the Government show that even after five years of free to client services, 7-11% of the people who visit for counselling and testing are identified as having HIV. In the first few years our prevalence (positive test results / all clients tested) was regularly in the 11-16% range. Our removal of barriers to counselling and testing distances and costs PLUS the assurance of reliable access to information, care, support and necessary treatment reassured the community.

Hope Clinic Lukuli is a sustainable provider of services that works with government and Uganda's development partners to achieve the national health strategy. Whereas donor projects open, deliver a specific service and close, we host their services and manage a continuing comprehensive package of HIV and TB related services.

TB in Uganda is widespread. Broadly speaking, TB can be carried by a person (who is therefore infected) but the TB is not active (it is latent). Avert.org describes the various conditions:

"A person can have active or inactive (sometimes called latent) tuberculosis. Active tuberculosis or TB disease means the bacteria are active in the body and the immune system is unable to stop them from causing illness. People with active tuberculosis in their lungs can pass the bacteria on to anyone they come into close contact with. When a person with active tuberculosis coughs, sneezes or spits, people nearby may breathe in the tuberculosis bacteria and become infected. People can also be infected with tuberculosis bacteria that are not active in their body. If a person has latent tuberculosis, it means their body has been able to successfully fight the TB bacteria and stop them from causing illness. People who have latent tuberculosis do not feel sick, do not have symptoms and cannot pass tuberculosis on to other people. In some people tuberculosis bacteria remain inactive for a lifetime without becoming active. But in some other people the inactive tuberculosis may become active tuberculosis if the person's immune system becomes weakened - for example by HIV"

The 2009 UNGASS report 'Country Status Report' considered the available surveys from 2005 to 2007 and noted gaps in the coordination of HIV, general health services and TB. Hope Clinic Lukuli has sought integration with government TB programmes and the TB CAP project but the focus has been on government-staffed facilities. UNGASS noted: "TB services, diagnostic services were available at 97% of the hospitals, 98% of HC IV, 50% of HC III, and 9% of HC II while treatment and follow up was available at 93% of hospitals, 98% HC IV, 70% of HC III and 11% of HC II." A challenge facing expanded coverage is that people with coughs, and people who see others with coughs and might be able to bring them for screening don't go to hospitals, or large district-level HC-IV facilities. They do go to maternity sites, fever management sites and the non-government facilities near their community.

The US Government's PEPFAR response to TB has sought to improve the available testing for TB among the HIV positive population and then the commencement and continued DOTS policy. With financial support to Hope Clinic Lukuli, our community network could mobilise patients with apparently active TB to be screened and, with the HIV patients who we already screen, ensure greater coverage of the population in Makindye Division.

The thirty years of AIDS has seen great development of policy, with it being more clearly informed by affected populations. The partnerships have years of experiences to draw from. The current challenge is to get the funds to the last organisations that serve the people. Hope Clinic Lukuli uses Support, Training, Infrastructure, Community Catalysts and Knowledge to design and deliver the comprehensive HIV and AIDS services that Makindye needs. We do it for and with government, our clients benefit from UNITAID, Global Fund, CHAI, national taxes and US PEPFAR resources.

As the world marks #AIDS30 and the UN GA HLM #AIDS2011 meets in June 2011, the civil society organisations that get on with the work should be considered. Advocacy has shaped the Policy, The Global Fund, PEPFAR and innovative financing like UNITAID are funding the Partnerships. The People are the clients to be, the patients on the register, the community they live in and the community-based health providers that they already rely upon for fever management, maternal health and childhood healthcare. If you would like specific examples and statistics, follow the links on the left above or email the Director