HIV,
AIDS and TB - An essential service for Lukuli and Makindye,
integrated with general healthcare
Uganda has the unenviable record of being one of the first
countries in Africa to experience and report deaths from
a strange wasting disease. Noticeable along the main transportation
route from Kenya, through Uganda's towns westwards to
Rwanda and Congo (then Zaire), transmission spread among
truck drivers and in the towns where they stopped. In
1986, Uganda's civil war ended, five years after US laboratories
first reported AIDS, the new government rapidly learned
that HIV was widespread throughout Uganda. Thankfully
they acted and the once massive rate of 29% infection
in urban areas was reduced. www.avert.org
has detailed information.
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Using play, we
inform the very young of general health and how
to stay safe. |
Experienced, trained counsellors
help men and women learn about HIV |
PEPFAR, The Global Fund, UNITAID
and the Government provide the ARVs |
Although
Hope Clinic Lukuli began as a site for safe delivery of
babies and to manage fevers in adults and children, it
was soon apparent that HIV was a huge, and unserved, medical
and social issue in Makindye. In the early years of the
clinic we could not offer counselling and testing, and
with the government facility 3 miles away and donor programmes
over 5 miles away, HIV services did not really reach Makindye
or our community in Lukuli. By walking into the Ministry
of Health, we were able to get help from Dr Akol and Dr
Onyango to have HIV testing kits and the drugs for PMTCT
at Hope Clinic. The procedure for preventing mother to
child transmission (PMTCT) of HIV was planned and tested
in Uganda so the least we could do was to bring it to
Lukuli.
The
early testing results and prevalence
In
June 2004 we finally brought the AIDS Information Centre
to Lukuli and on their first day they were able to counsel
and test 40 people. We continued with that for several
months of once a week counselling days at Hope Clinic
Lukuli. Looking back, the results of people we tested and
found positive as a percentage of the people we tested
was alarming, regularly over 15% (when national prevalence
was reported as less than 10%, even 6%). We took this
to be indicative of a significant un-tested population.
With no testing site within 2 miles of Lukuli in any direction,
and people unlikely to spend money to travel for potentially
bad news, HIV services and knowledge of HIV status were
absent from Lukuli. The need for counselling space and to
be able to host care and support and treatment services
was another spur to raise the money to build the current
facilities which opened in July 2005.
Uganda's
response to HIV, AIDS and TB
As
noted by Avert, Uganda's response to HIV and AIDS was
led by government action to see HIV as a real risk to
the whole country. "Zero Grazing" to reduce
affairs outside the house was a major campaign and in
the late '90's posters and billboards explained "the clear link"
that alcohol leads to sex leads to HIV. It was not until
2004 that ARVs were available free of charge in Uganda from
any site in Uganda. In 2006, Hope Clinic Lukuli was inspected
by the AIDS Control Programme, Ministry of Health and
accredited as an ART centre - one of the very few non-government
organisations to have that status, especially as a community
clinic. We remain primarily a general healthcare clinic
for fevers, maternity, child health and laboratory testing.
This greatly reduces the stigma that people would face
if we were solely an HIV clinic or heavily branded ourselves
as such. Also in 2006, the Joint Clinical Research Centre
began a programme of visiting every two weeks to take
blood samples for testing from our patients tested and
found positive over the prior two weeks. Most importantly,
JCRC brought medics experienced in HIV case management
and ARVs and since then we have offered a comprehensive
service: awareness, prevention advice, counselling and
testing with PMTCT services, care and support, distribution
of mosquito nets, clean water systems, condoms, information
leaflets and cotrimoxazole (Septrin) to reduce opportunistic
infections. Since mid 2011 we have had over 660 HIV positive
clients on our register, with almost 300 of them already
on ARV.
Hope
Clinic Lukuli - discussing the challenges to continued
care for those in need
The
clinic exists because the community need the services
and the overstretched government trusts and supports us
to work within their policy framework for the population
of Lukuli and adjoining parishes. Our catchment population
are not employed at companies that provide medical insurance
and their household incomes can not meet the costs of
HIV drugs or care and support. In the developed world,
health provision has a social safety net - in Uganda,
at least in Makindye, Hope Clinic Lukuli is that safety
net. We work with government, we liaise with donor programmes
inside and outside Uganda and it brings services to our
community. In 2008, the international HIV implementers
conference was held in Kampala and Ambassador Dybul was
interviewed by the BBC on the opening day, with our Angella
the other interviewee. In the build up, NTV filmed a story
of our work and local newspapers compared our services
to the government. Internationally, in 2010 changes in
which contractor would administer PEPFAR funds in Uganda
led to miss-reporting that patients would be denied care.
CNN interviewed our patients and staff. UNITAID, the innovative
funding programme and MassiveGood feature our work on
their website. We tweet!